Institution: University Hospital of Copenhagen Department of
Rheumatology
Rigshospitalet
Blegdamsvej 9, Building 4242
Copenhagen 2100 Denmark
Coordinating Investigator: Soren Jacobsen
Other Local Participants: Susanne Ullman
Gitte Strauss
Telephone Number: 45 3545 7560
Fax Number: 45 3545 7568
Institution: University Hospital Aintree
3rd Floor Clinical Sciences Centre
Longmoor Lane
Liverpool L9 7AL
UK
Coordinating Investigator: Anderson, Marina MBChB, MSc, MRCP, PhD
Telephone Number: 44 151 529 5888
Institution: Leeds University, Academic Unit of Musculoskeletal Disease
Department of Rheumatology
Leeds General Infirmary
Great George Street
Leeds, West Yorkshire LS1 3EX
England
Coordinating Investigator: Professor Paul Emery, BA, MA, MBChir, MRCP, MD, FRCP
Other Local Participants: Cheryl Fernandes, MBChB, MRCP
Naomi Reay, RGN, RSCN, BSc
Fax Number: 44 113 39 22896
Institution: Rheumatic Diseases Centre
Unversity of Manchester
Eccles Old Road
Hope Hospital
Salford M6 8HD, UK
Coordinating Investigator: Herrick, Ariane, Dr.
Other Local Participants: Jayson, Malcolm I.V.
Telephone Number: 011-44-161-787-4265
Fax Number: 011-44-161-787-4687
Institution: Royal Free Hospital
Centre for Rheumatology
Rowland Hill Street
London, NW3 2PF
Coordinating Investigator: Black, Carol, M.D.
Telephone Number: 011 44 0 207 794 0432
Fax Number: 011-44 0 207 435 0143
Institution: Royal National Hospital for
Rheumatic Diseases
Upper Borough Walls
BATH BA1 1RL
ENGLAND
Coordinating Investigator: McHugh, Neil, FRACP
Other Local Participants: Maddison, Peter, Professor
Telephone Number: 011-44-1225-465941
Fax Number: 011-44-1225-421202
Institution: Centre Hospitalier Unversitaire de Grenoble
Department of Vascular Medicine
BP 217
Grenoble Cedex 09
France
Coordinating Investigator: Carpentier, Patrick, PhD
Other Local Participants: Imbert, Bernard, MD
Telephone Number: 011 0033 4 76768960
Fax Number: 011 0033 4 76765824
Institution: Hopital Claude Huriez
Department of Internal Medicine,
National Scleroderma Center
Lille, 59037 France
Coordinating Investigator: Hachulla, Eric
Other Local Participants: David Launay
Telephone Number: 0033 320444296
Fax Number: 0033 320444062
Institution: Hôpital Saint Louis
1, Avenue Claude Vellefaux
75010 Paris France
Coordinating Investigator: Farge, Professor Dominique
Other Local Participants: Alain Mauviel
Zora Marjanovic
Doina Ilie
Marjan Ertault
Fax Number: 33 1 42 49 94 78
Institution: Paris V University School of Medicine
Department of Rheumatology A
Hôpital Cochin
27, Rue FG Saint Jacques
75014 Paris, France
Coordinating Investigator: Kahan, Andre, MD, PhD
Professor of Rheumatology
Other Local Participants:
Menkes, Charles Joel, MD
Professor of Rheumatology
Allanore, Yannick, MD, PhD, Assistant
Telephone Number: 011-331-5841- 2551
Fax Number: 011-331-5841- 2624
Institution: Hôpital Cochin
Department of Internal Medicine
27, rue du Faubourg Saint-Jacques
75014 PARIS France
Coordinating Investigator Guillevin, Loic, MD
Insititution: Univerisity of Erlangen
Department of Internal Medicine 3
Medezinische Klinik 3, Universitatsstr. 29
Erlangen, Germany 91054
Coordinating Investigator: Distler, Jorg
Other Principal Investigators: Schett, Georg
Phone: 011-49-9131-85-39102
Fax: 011-49-9131-85-36448
Institution: Charite University Hospital
Schumannstr. 20/21, Rheumatology
Berlin 10117 Germany
Coordinating Investigator: Riemekasten, Gabriela
Other Local Participants: Burmester, G.R., Professor
Hanitsch, Dr. Leif
Worm, Dr. Margitta
Schumann, Dr. Frank
Telephone Number: 011 0049 30 450613017
Fax Number: 011 0049 30 450513928
Institution: University of Cologne, Germany
Department of Dermatology
Joseph Stelzmann Str. 9
50924 Koln
GERMANY
Coordinating Investigator: Krieg, Thomas, MD, Professor
Other Local Participants: Sollberg, Stephan, MD
Telephone Number: 011-49-221-478-4500
Fax Number: 011-49-221-478-4538
Institution: Hamburger Zentrum für Kinder- und Jugendrheumatologie
Kompetenz-Zentrum für Sklerodermie im Kindes- und Jugendalter Am Klinikum
Eilbek Dehnhaide 120
22081 Hamburg
Coordinating Investigator: Foeldvari Ivan MD, Kinder- und Jugendrheumatologe
Phone: 040 2092 3694
Fax: 040 2092 3693
Institution: University Medical School of Pecs
Department of Immunology and Rheumatology
H-7621, Pecs
Irgalmasok u. 1.
HUNGARY
Coordinating Investigator: Czirjak, Laszlo, MD PhD
Other Local Participants: Kumanovics, Gabor MD PhD
Varju, Cecilia MD
Andrea, Szalai MD
Judit, Radics MD
Telephone Number: 011-36-72-507-359
Fax Number: 011-36-72-507-339
Institution: St. Vincent’s University Hospital
Elm Park
Dublin 4
Ireland
Coordinating Investigator: Veale, Douglas, MD
Telephone: 353-1-2094781
Fax: 353-1-2839420
Institution: DIMMIP-Rheumatology Unit, University of Bari Medical
School
Piazza G. Cesare 11
Pad. Chini Policlinico
Bari 70124 Italy
Coordinating Investigator: Lapadula, Professor Giovanni
Other Local Participants: Florenzo Iannone
Telephone Number: 39 080 5478 866
Fax Number: 39 080 5478 802
Institution: University of Genoa, Department of Immune-Endocrinology
U.O. Internal Medicine Immunology
Viale Benedetto XV, 6
Genova 16132
Italy
Coordinating Investigator: Professor Francesco Indiveri
Other Local Participants: Massimo Ghio, MD
Marta Rizzi, MD
Marta Sessarego, MD
Gilberto Filaci, MD
Telephone Number: 011 39 010 353 7988
Fax Number: 011 39 010 353 8994
Institution: Clinical Immunology and Allergology
University of Milano
Via F. Sfozzo 35
20122 Milano, Italy
Coordinating Investigator Scorza, Raffaella, MD
Other Local Participants Cazzoni, Monica, MD
Vanoli, Massimo, MD
Origgi, Laura, MD
Viscuso, Tiriana, MD
Molteni, Monica, PhD
Raimondi, Massimo, MD
Masciocchi, Michela, MD
Telephone Number 39 02 5503 3567
Fax 39 02 5503 3568
Institution: Seconda Universita' Degli Studi di Napoli
Cattedra di Reumatologia
Edificio 3 -Via S Pansini 5
80131 Napoli, Italy
Coordinating Investigator: Valentini, Gabriele, MD
Other Local Participants: D'Angelo, Salvatore, MD
Naclerio, Caterina MD
Cuomo, Giovanna MD
Telephone Number: 011-39-0-81-546 4487
Fax Number: 011-39-0-81-566 6747
Institution: Instituto Di Clinica Medica IV
Viale Pieraccini 18
Villa Monna Tessa
50139 Firenze Italy
Coordinating Investigator: Matucci-Cerinic, Marco, MD, PhD
Associate Professor of Medicine
Other Local Participants: Righi,Anna MD
Angotti,Chiera MD
Del Rosso, A MD
Generini, Sergio, MD
Conforti, ML MD
Pignone, Alberto, MD, PhD
Telephone & Fax Number: 011-39-0-55-42-79271
Institution: Instituto di Clinica Medica
1st Clinica Medica
Polo Didattico
Via Tronto, 10
60020 Ancona Italy
Coordinating Investigator Gabrielli, Armando, MD
Other Local Participants Sambo, Paola, MD
Casagrande, Walter, MD
Telephone Number 39 71 2206104
Fax Number 39 71 2206103
Institution: VU University Medical Center
PO Box 7057
Amsterdam 1007 MB
The Netherlands
Coordinating Investigator: Voskuyl, A.E. MD, PhD
Other local participants: Dijkmans, B.A.C MD, PhD, Professor
Telephone number: 003 20 444 3432
Fax number: 0031 20 444 2138
Institution: University Medical Centre St. Radboud
PO Box 9101
Nijmegen, The Netherlands
Coordinating Investigator: Frank HJ van den Hoogen, MD, PhD
Telephone Number 31-24-3614580
Fax Number 31-24-3541433
Institution: Dept. of Rheumatology, National Hospital Rikshospitalet
Sognsvannsveien 0026
Oslo 0029
Norway
Coordinating investigator: Gran, Jan Tore MD
Other local participants: Midtredt, Oyvind
Gunnarsson, Ragnar
Phone number: 047 23 07 17 99
Fax number: 047 27 48 69
Institution: Dept Dermatology, Central Clinical Hospital MSWia
Woloska 137
Warzawa 02-507
Poland
Coordinating investigator: Rudnicka, Lidia Prof
Other local participants: Szymanska, Elzbieta MD, PhD
Sicinska, Justyna MD
Institution: Warsaw School of Medicine
Department of Dermatology
02-008 Warsaw
Koszykowa 82a
Warsaw, POLAND
Coordinating Investigator: Jablonska, Stefania, MD
Other Local Participants: Blasreryic, Maria, Professor of Dermatology
Majewski, Shovomir, Professor of Dermatology
Telephone: 011-48-22-62-15180
Fax Number: 011-48-22-62-25787
Institution: Servicio de Reumatologia, Hospitais da Universidade de
Coimbra
Praceta Mota Pinto
3000 Coimbra Portugal
Coordinating Investigator: Malcata, Armando
Head of Rheumatology
Other Local Participants: Maria Joao Salvador, MD
Jose Antonio Pereira Silva, MD, PhD
Telephone Number: 35 1239400412
Fax Number: 35 1239401045
Institution: Ninewells Hospital and Medical School
University Department of Medicine
Dundee, DD1 9SY, Scotland
Coordinating Investigator: Belch, Jill F. , MD
Reader and Consultant Physician
Other Local Participants: Morley, K., MD
Telephone Number: 011-44-1382-660111
Fax Number: 011-44-1382-632333
Institution: Lund University Hospital
Department of Rheumatology
S-221 85 Lund, Sweden
Coordinating Investigator: Hesselstrand, Roger, M.D. PhD
Other Local Participants: Scheja, Agneta, M.D., Ph.D.
Wuttge, Dirk M MD PhD
Telephone Number: 011-46-46-177178
Fax Number: 011-46-46-128468
Institution: University Hospital Zurich Dept. of
Rheumatology and Physical Med.
Gloriastrasse 25, CH - 8091
ZURICH - SWITZERLAND
Coordinating Investigator: Bruhlmann, Pius, M.D.
Other Local Participants: Michel, Beat A., MD - Professor
Stucki, Gerold, MD, MS
Telephone Number: 011-411-255-2996
Fax Number: 011-411-255-4415
Coordinating Investigator: Inanc, Murat MD
Institution: University of Istanbul
Istanbul Faculty of Medicine
Department of Internal Medicine
Division of Rheumatology
34390, Capa, Istanbul, Turkey
Telephone Number: 011-90 212-6613418
Fax Number: 011-90-212-6318699
Institution: Lviv Medical University
K.Levytskogo Street 51/6
Lviv 79017 Ukraine
Coordinating Investigator: Nadashkevich, Oleg MD, PhD.
Telephone Number: 38 097 2496042
Fax Number: 38 0322 985911
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